This post is dedicated to my strong mama, my strong auntie, and my strong sister. They each have lupus and are some of the strongest and bravest people I know: PERIOD. Each day they fight against themselves for control of their life and win. Not only are they fighters but they often times go misunderstood by even the people closest to them. Lupus isn’t something you typically see so most people who have don’t look “sick”.
For anyone who is unfamiliar, lupus is a chronic autoimmune disease. According to the Lupus Foundation of America, it is a disease that can damage any part of the body (skin, joints, and/or organs). “Chronic” means that the signs and symptoms tend to last longer than six weeks and often for many years. Each person is different and this disease manifests differently for most people. Sometimes there are noticeable signs of it on the skin but it also shows up as pain felt by the person with lupus, and not seen by others.
Those with lupus can suffer from a whole host of problems. Here are some listed below…
The most common symptoms of lupus (which are the same for men and women) are:
- Extreme fatigue (tiredness)
- Painful or swollen joints
- Anemia (low numbers of red blood cells or hemoglobin, or low total blood volume)
- Swelling (edema) in feet, legs, hands, and/or around eyes
- Pain in chest on deep breathing (pleurisy)
- Butterfly-shaped rash across cheeks and nose
- Sun- or light-sensitivity (photosensitivity)
- Hair loss
- Abnormal blood clotting
- Fingers turning white and/or blue when cold
- Mouth or nose ulcers
What’s sad is that this disease can be treated but not cured. There is research being done on this disease which you can donate to by going to the Lupus Foundation of America’s website:
I felt the need to discuss these ladies because lupus is still something that not very many people know of. It’s usually not noticeable to others so the pain they feel is usually greater than what they let on. Not only that, but it can lead to a whole host of other medical problems. My mom for instance, is very susceptible to getting sick because her body does not fight back properly against the disease. My sister and aunt both have had it manifest in ways such as swelling and discoloration of skin. They fight just to do everyday things most of us take for granted. That’s exactly why I made this podcast episode for them. If you have time, give it a listen.
As always, be sure to like, comment, and share.